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I am a Caregiver

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Family Caregiving Counts

These facts and figures provide perspective on the size and nature of family caregiving in America today.

More than one quarter (26.6%) of the adult population has provided care for a chronically ill, disabled or aged family member or friend during the past year. Based on current census data, that translates into more than 54 million people.

Almost 100 million people in the United States have one or more chronic conditions. Over the next twenty-five years, this number is expected to increase to 134 million Americans.

As the nation ages and more of us have chronic health issues, the demands placed on family caregivers will escalate, affecting nearly every American family. Simultaneously, the pool of family caregivers is dwindling. In 1990 there were 11 potential caregivers for each person needing care. In 2050 that ratio will be 4:1.

Caregiving is largely a women's issue, although this is changing. Approximately 65% of caregivers are female, mostly wives and adult daughters.

Caregiving can last from less than a year to over forty years. Some 80% of caregivers provide unpaid assistance seven days a week.

Five social trends may affect the supply of caregivers in the future: (1) increasing divorce and remarriage rates; (2) increasing geographic mobility; (3) decreasing family size; (4) delayed childbearing; and (5) more women in the workplace.

Fifty nine percent of the adult population either is or expects to be a family caregiver.

Approximately 80% of home care services are provided by family caregivers.

The value of the services family caregivers provide is estimated to be $257 billion a year. Another way to look at this is to recognize that the work caregivers do takes $257 billion out of the cost of healthcare in this nation each year.

Sixty-one percent (61%) of "intense" family caregivers (those providing at least 21 hours of care a week) have suffered from depression. Some studies have shown that caregiver stress inhibits healing.

Heavy duty caregivers, especially spousal caregivers, do not get consistent help from other family members. One study has shown that as many as three fourths of these caregivers are "going it alone".

25% of all workers provide elder care (65+). Just over half of all caregivers for persons aged 50+ are employed full-time and almost two-thirds are employed either full- or part-time.

The cost of informal caregiving in terms of lost productivity to U.S. businesses is on par with the cost of worker’s comp – in excess of $180 billion.

As a result of their caregiving, family caregivers are estimated to each lose an average of $25,494 in Social Security benefits, an average of $67,202 in pension benefits and an average of $566,433 in wage wealth. Combined, the result is a loss of $659,139 over the family caregiver’s lifetime.

Caregivers of people aged 50+ spend an average of 17.9 hours per week providing care. This figure increases to 20 hours per week among those providing care for individuals aged 65+.

20% (4.5 million out of 22.4 million) of those caring for family members aged 50 and older spend over 40 hours per week providing care, with some providing constant care.

The duration of caregiving can last from less than a year to over 40 years. The majority of caregivers provide unpaid assistance for one to 4 years; 20% provide care for 5 years or longer. Caregivers spend an average of 4.5 years providing care.

 
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Sources

Arno, P. S., Levine, C. and Memmott, M. M. (1999). The Economic Value of Informal Caregiving. Health Affairs, Vol. 18, No. 2, pp. 182-188.

Bond, J. T., Galinsky, E. and Swanberg, J. E. (1998). The 1997 National Study of the Changing Workforce. Families and Work Institute, New York, NY.

Chronic Care in America (Institute for Health & Aging, Univ. of CA/SF for the Robert Wood Johnson Foundation) 1996.

Health Affairs March/April 99.

Journal of the American Medical Association, December 15, 1999, Vol. 282, No. 23.

Metlife Mature Market Group (June, 1997). The Metlife Study of Employer Costs for Working Caregivers. Metlife Mature Market Group, Westport, CT.

Metlife Mature Market Institute (November, 1999). The Metlife Juggling Act Study: Balancing Caregiving with Work and the Costs Involved. Metropolitan Life Insurance Company, New York, NY.

National Family Caregivers Association/Fortis Long Term Care (Caregiving Across the Life Cycle) 1998; Lancet 1995; 346 (Slowing of Wound Healing by Psychological Stress - Kiecolt-Glaser, JK et al)

National Family Caregivers Association (Random Sample Survey of 1,000 Adults Sponsored by Aleve)

US Bureau of the Census Statistical Brief, Sixty Five Plus in the United States, May 1995.

US General Accounting Office (GAO/HEHS 95-26, Long-Term Care: Diverse, Growing Population Includes Millions of Americans of All Ages) 1994

 
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